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Could there be a genetic link with BID?

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(@clark)
Eminent Member
Joined: 3 months ago
Posts: 21
Topic starter   [#97]

There's zero science behind my post. This is just my own life and some things I've pulled together that have sparked interest over the last few years, given other research I've read and things that have happened to me. I know no one has tied this together in a scientific matter, but here's my experience.

When I think back to my first memories between 3-4 years old they center around three or four things. One, the birth of my sister. Two, an injury I had from falling into the wooden arm of a chair at my grandparents' house that split my face and lip completely from the bottom of my left nostril through my lip, leaving a very unique facial scar. Three, my grandpa's foot, which had a pretty severe wound from being shot in WWII. My entire life he had a noticeable limp.

A few years later, around 5-7 years old, he was cutting grass pushing a riding mower on a hill, slipped over the edge and into a ditch by the road. He broke his leg and ankle and was yelling for help, but I was afraid. The mower was still running and I'm sure he thought it might fall on him. He wanted me to go to the neighbor's house next door, but they had a terrifying dog. Finally, some strangers stopped and helped him out of the ditch and turned off the mower. My next memory is him in a cast.

If my grandpa thought he had something to do with my BID he would die all over again. However, this is where my brain has led me over the years. He almost never showed his foot with the gunshot wound, but when he did it was fascinating to me. My grandpa was a major part of my life. He pretty much took care of my sister and me while my parents worked, since he retired early. He never talked about WWII, but I knew he had earned medals as well as a Purple Heart. After he died my grandma told me he had shot himself in the foot. I don't know the real truth. Perhaps he did shoot himself because he was afraid of dying and wanted out. Perhaps it was an accident while cleaning a gun, which I also heard from his nephew. Perhaps he was shot in combat. He's been gone for 20+ years, so I'll never know the truth.

He was also, by the way, completely toothless. Apparently he let the army dentist pull all of his teeth. I know dental health would have been poor for someone born in 1911 and growing up during the depression, so maybe it was simply better to wear dentures. Again, this is my brain fitting pieces together to make sense of my need to be an LAK amputee. Here's another interesting detail. Before my grandma died I heard her say my grandpa wasn't that sexually interested in her until she got sick and had to use a wheelchair. Maybe he had regrets. Maybe it was an attraction. I'll never know.

This is when things really began to feel like there could be some sort of genetic link.

A few years ago, before my middle child graduated college, they told my wife and me they were non-binary. Researchers studying BID and gender incongruence have noted overlapping neurological mechanisms, suggesting the two conditions may share common ground in how the brain maps identity onto the body. Based on what we now know, transgender and non-binary identity sits close to BID in that landscape. There's a lot of speculation on my part, I know that. Maybe I'm hoping there's a link so I can put a finger on the cause. I've never felt brave enough to ask my child how they really feel. It just felt like their personal identity. We accept and love them completely, but after twenty years of knowing them as a daughter we still struggle with pronouns sometimes. They know it's not on purpose, and we keep trying. Maybe someday I can have that deeper conversation with them.

If you have similar self-made hypotheses I would love to hear them.

By the way, I did search the forum to see if there was already a topic related to this matter. I could not find anything. If I somehow missed it please let me know and I can move this post.



   
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(@johnsco21)
Estimable Member
Joined: 1 year ago
Posts: 81
 

For sure, BID, along with GD and Autism, is neurodivergent.  I think we see if one has an Autistic child, there is a chance that one of their other children might be Autistic.  Not all of their children would be affected, but a chance that it would be inherited traits. So for sure, it is possible if one is a BID sufferer, they may pass the trait on, but it does not mean it would affect all their children.



   
Clark reacted
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(@clark)
Eminent Member
Joined: 3 months ago
Posts: 21
Topic starter  

Anything is possible, that's for sure. If I didn't know about and struggle with BID myself I would never believe it existed, let alone think there could be a genetic link.

I just met with a new therapist who had no prior knowledge of BID, but she has extensive experience with gender dysphoria in the Pacific Northwest. She even reached out to her network of other therapists and not one had heard of BID. It's a stark reminder of just how far behind clinical awareness is relative to where the research is heading. Just when it feels like things might be catching up, there are still so many unknowns.



   
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Leandro
(@leandro)
Member Admin
Joined: 1 year ago
Posts: 74
 

For BID, the ICD-11 does not mention genetics, it just defines Body Integrity Dysphoria clinically as a persistent desire to become physically disabled...

DSM-5 does not include BID, but if we assume some kind of possible correlation with Gender Dysphoria, then is multifactorial (including genetic such as some degree of heritability).

I have proposed someplace else a possible over-empathic or unusually strong perceptual response to an impaired body. Tool-use can modify body schema, when we use hammers, brushes, crutches, wheelchairs etc.. they can become incorporated into the way the body is perceived and acted through. This suggests that body schema and body image are not fixed structures, but can be shaped by repeated experience.

Applied cautiously to BID, one could ask whether visual exposure, comparison with others, pretending behaviour, and repeated imagination of the impaired body may trigger or reinforce a specific internal body image over time. In that sense, BID may not be only neurological, but also perceptual, social, and experiential. The desired impaired body becomes internalised as the body that feels correct.

Regarding therapists not knowing about BID. Nothing new here. BID is still treated as a taboo topic.


Leandro Loriga, Ph.D.
Medical Anthropology · Bioethics · AI Ethics
Anthropological and bioethical consulting for public institutions, healthcare organisations, and research initiatives.
Philosophical practice and ethical consultation.
Website
leandroloriga.com
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bodyintegritydysphoria.com
corpussui.org
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info@leandroloriga.com

Esse et non esse possunt identificari


   
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(@johnsco21)
Estimable Member
Joined: 1 year ago
Posts: 81
 

I would say the trigger would be more to the point that one would have the idea, maybe at an early age, that their body is somehow wrong.  Seeing someone who is an amputee or a para in a wheelchair may give one the idea that, yes, that is right for me.  That is how I should be.  A young child may not know about amputation, but may feel that their limb should not be there or their legs should not work.  Seeing someone as such just fills in the blanks, let's say, and just gives them the idea of what they should be like.  It is not the idea of one saying.  That is cool, I want to be that way too.  



   
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