An interesting perspective….
I am adamant that this is how it would be for me. A new beginning, a fresh start…relieved.Â
Folks, if the objective is to end the suffering caused by BID then really, the safest route should be chosen. That of therapy leading to amputation. I cannot speak for others on the board, but it is absolutely my objective to achieve relief from the BID waves and anxiety by amputation. I will happily entertain questions on this position.
Â
Regards,Â
- JL
Yes, it is possible to get an amputation for CRPS, though even then, they let one suffer for many years before they will do it. The pain has to be so great that they will agree to amputate. Yes, they will have relief from the pain, but getting it done is hard.Â
The pain of suffering from BID is similar, and the relief of getting what one needs would also be great. The medical community has to understand how bad BID can get, and if someone is diagnosed with BID, they should be able to prescribe affirming surgery. We know that therapy does not work. Â
I hope that this forum will one day help the medical community understand what BID is all about and how it affects people. Maybe they will understand it is not a delusion but a neurological issue similar to GD. It is not a choice but something that is part of a person. People in the BID community need help, and just being dismissed as sufferers as being psychotic and needing therapy is not going to help anyone. People are suffering, and the pain can at times be great. People need what they need.
Here’s what I pulled out from the article.Â
CPRS is very similar to how our brains work. The only difference is that ours is not from a specific traumatic injury. The anguish, the suffering…very similar, not physically painful but mentally exhausting. Challenging to say the least. Having gone through neurological pain for 7.5 years, I completely relate. It wasn’t until my recent surgery for said issue that I completely understand the relief. Life changing. Side effects are still present but now easily manageable.
One thing that I have set in play I have just realized, I have publicly set the stage. Casting of my leg a year ago helped to make the use of my KAFO an acceptable excuse as to “why” I use it without using that term. Acceptance to my “condition”. If I ever do achieve my goal I can truly say that that it was for neurological purposes. Not exactly a lie, but reasonable for the current conditions.
Perspective. 🤔
